Hi Kamie. Thank you for doing this. I've sent you a personal e-mail, but have not received a response. Will all the forums from the previous braintalk be added? I am hoping that the site dedicated to my precious boys will be re-opened. I know there wasn't a lot of activity on the Norrie forum, but would like it to stay open in hopes that someone will stumble across it. Norrie is a very RARE disease and there is so little known about it. Being able to talk to someone who has experienced the disease first hand could be crucial to a newly dx'd kiddo. Please let me know what I can do to see that this site re-opens.

Sincerley,
Mama Sue