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Old 10-01-2006, 07:38 AM
langansmom langansmom is offline
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Join Date: Aug 2006
Posts: 61
15 yr Member
langansmom langansmom is offline
Junior Member
 
Join Date: Aug 2006
Posts: 61
15 yr Member
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Langan definitely has odd smells, too.

When Langan was on keto, her sweat smelled like someone was smoking marijuana in her skin- I swear. Not that I have much opportunity to smell pot, but it's not a smell you forget. We never figured that one out and it has gone away now that she's been off the diet for so long.

We worried about the mapile syrup urine disease but she was negative also. Her urine smelled really sweet a few weeks ago and I mentioned it to the pediatrician. He said some UTIs cause sweet smelling urine. We did a culture and sure enough she had a UTI. Langan's breath also sometimes smells really nasty- like fish. We are looking into it being a sinus issue. But I still think there's something metabolic going on that they don't have a name for yet.

Sigh.
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Wendy, mom to Langan, the love of my life, born 7/19/02. Global delays, intractable seizures, mystery girl. VNS implanted 2/10/06, now on small dose of lamictal and fighting for seizure control, and wife to Jon, the other love of my life!!
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