Fanfaire,
you know I was in the very same shoes last Dec. I hope I have sent you enough info and answered enough questions to be of some little help for you. One thing I didn't mention. Each of the waiting room areas at Mayo have computers in them for patient and their family use. They have books, puzzles and magazines. Nice restrooms that are kept clean. Be sure to wash your hands often there. So many sick people and your immune system is problematic.
I can't tell you how much I wish you some resolution to this problem.
And some help....

Billye