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Old 11-29-2007, 05:01 PM
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ali12 ali12 is offline
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Join Date: Jul 2007
Location: Yorkshire, UK
Posts: 2,463
15 yr Member
ali12 ali12 is offline
Magnate
ali12's Avatar
 
Join Date: Jul 2007
Location: Yorkshire, UK
Posts: 2,463
15 yr Member
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Hi Nicole,
I hope you are Ok.
I totally know how you feel about people not 'believing how much pain you are in', before I was diagnosed doctors would say to me that I was 'making the pain up'
My moms great she is a really good with me, her mom (my nanan) had MS so I think she understands neurological disorders. My dad is more of a 'bury your head in the sand person', I am sure that he thinks that if he doesn't think about my illness then it would go away - but life is not like that unfortunatley. My grandma and grandad are still confused about what is up with me, I don't think they understand how bad the pain is. I am unable to go to school but my friends are really good with me, they come and see me at home, take me out etc. I am very lucky to have such good friends, it's times like this when you find out who your true friends are. Yes, some of my friends don't understand RSD, but most of them are Ok with me.

My health proffessionals (PM doctor, Physiotherapists, Psychologists etc) are not really good, I don't think they know much about RSD. I had a Guanethidine nerve block on my leg in March, which caused me to lose my balance and the hospital couldn't even be bothered to lend me a wheelchair, even though I need one, my mom had to buy one

Congratulations on getting married

Take care
Alison
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