I am so sorry for your pain. A pain management doctor is a great idea. When I was first diagnosed I was on major pain meds until my surgery. 1 year after surgery I was pain free for 6 years. I have had a relapse but, only on low doses of pain meds. Make sure you see someone who understands TOS. Some doctors don't like to give patients pain meds but it can be necessary. I hve been on this site for awhile now and many people will pass on very important information. Best of luck, Linda