In Remembrance
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Join Date: Aug 2006
Posts: 1,002
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In Remembrance
Join Date: Aug 2006
Posts: 1,002
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Oh, I need to make clear a miscommunication here -
I never ever wrote that Reynaud's caused TOS.
I mention Reynaud's here only because there are more than a few people here who have TOS and also have Reynaud's. So when I read about the symptoms of the slow growing scleroderma, and my own difficulty in breathing, then I was shocked to read more on Reynaud's as 80% of scleroderma patients also have Reynaud's. (The links aren't working on my post, but that's some of the info. I posted.) (Reynaud's patients do not nec. get scleroderma though, the statistics do not reverse. The facts are that most Reynaud's patients do NOT get scleroderma - I read something like 5%.)
I believe that somewhere in my med reports there is a discussion of Reynaud's, and so I am somewhat concerned with this new symptom of difficulty breathing and hardening of the thorax area. I am hoping it is of no correlation to scleroderma, but, since I have already had some positive testing by my rheumy, I will go back at some point and be retested, especially if my symptoms increase.
I share this info. with folks only for interest...
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