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Old 10-01-2006, 12:28 PM
lilac7700 lilac7700 is offline
Junior Member
 
Join Date: Sep 2006
Location: georgia
Posts: 21
15 yr Member
lilac7700 lilac7700 is offline
Junior Member
 
Join Date: Sep 2006
Location: georgia
Posts: 21
15 yr Member
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Before Paige was ever evein considered as a new infant to have any sort of problems, one thing I always mentioned to the dr.s at her 1 week check up, 6 week check up, and so on was the strong, strong scent of her urine. It wasnt maple syrup sweet, but it wasnt a urine smell either. a year later she was diagnosed with a uti which led to a battery of tests that eventually led us to kidney disease. but thats probably not the case with Jake or Katie. But I mention this because her acid levels are high (can't remember exactly what). It seems like all her tests are always a little off or borderline, when they check her blood or urine. But i didnt realize until this post that I havet noticed that smell w' Paige lately. She is on some meds for her kidneys, Pyridoxine. Maybe that means its working!!
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Melissa, mom to 3 girls. Dalynn 9, Reese 3, and Paige born 2/7/2005. Paige dx w/ Periventricular Nodular Heterotopia and Primary Hyperoxularia type II of the kidneys. Global developmental delays.
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