Of course, my diagnosis wasn't official till a few years ago.

I know what everyone is saying about TOS being 'controversial', it's one of those things that a medical professional either believes in or not, kinda like TMJ when it was a "new" thing. The best way TOS has been explained to me is that it is a diagnosis of exclusion - meaning when everything else has been excluded TOS is the likely cause...sounds funny but explains the many many tests that a TOSer goes through...