Originally Posted by LinJane

First symptoms were in 9/98 after surgery. I was either misplaced or dropped during the surgery. Immediate pain in jaw. I could not eat. I was put in traction and hospitalized for 1 week and then home traction for around 2 months. One doctor said it was Lyme disease. What a joke. The others said it was a herniated disc. I had disc replacement surgery 6/99. Did not help. The doctors thought I just wanted more pain medication when I said I was still in pain. After seeing my neurologist, then Dr. Schwartzmann in Philly, was sent to Dr. Togut for the real diagnosis. Dr. Togut performed the rib resection and scalenectomy in 2000. About 1 year later Iwas pain free. I have suffered a set back since 2006 but would not trade those 6 years for anything. I gave birth to my 4th child, a daughter who is the light of all of ourt lives. I am in pain but it is controlable. I beleive I will always suffer from symptoms but if I can live a fairly "normal" life, that is ok. I am sorry for all of you TOS'rs who can't. It is a horrible syndrome that more needs to be done about. Linda