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Old 12-05-2007, 10:35 AM
asanders104 asanders104 is offline
New Member
 
Join Date: Dec 2007
Posts: 1
15 yr Member
asanders104 asanders104 is offline
New Member
 
Join Date: Dec 2007
Posts: 1
15 yr Member
Help myasthenia is taking over

Hello, I was looking for a site like this for a long time. Hope there is someone out there that can help me get thru this! In Jan. 2006 I was diagnosed with MG and seemed to have been going up and down since. My symptoms are double vision, shortness of breath (all the time)(VERY SCARY), severe fatigue/nausea (all the time), weakness in my arms and sometimes my neck and face. I also have some anxiety and depression and just recently was diagnosed with gastroparesis (which I'm told is very rare in myasthenia gravis)(I CAN BARELY EAT ANYMORE!). This disease seems to have taken over my life physically and emotionally! I am 29 married w/2 daughters an I feel like a failure to them because I am unable to do alot due to being sick most of the time. I 've been thru a series of treatment none seems to be very effective or seems to last I just feel like giving up most of the time. I had a thymectomy in march 2006 shortly after being diagnosed but I am still not feeling any better from that. That year my doctor gave me mestinon which made me cramp and did not seem to work anyway, then she tried prednisone which gave me strength but did NOT help my breathing and my eyes (it also gave me cosmetic side effects) which being a young women bothered me alot. So, my doctor then tried IVIG which I was hospitalized for a couple days because I was getting very weak and that continued outpatient 2x a month for a year. I was good for a while with no meds and then I got sick again. My doctor wanted to try something new so I did plasmaphersis 2x over the next couple of months (which made me severely sick to my stomach). but worked for a very short period of time. In. Sept. 2007 I started getting weak again and ended up back in the hospital for IVIG again last week. I was released 2 days ago and was told to start prednisone again (I decided to try again and worry more about my health then my appearance this time) also mestinon again 1/2 pill to start to limit cramping. It has only been 2 days and I feel so fatigued, sick to my stomach and weak I don't think I can get thru this. I am so scared and afraid I want to give up but I try to hold on for my family! I often pray to God that a miracle will happen and I will wake up tomorrow healthy again. It's hard to believe just 4 years ago I was coaching my daughters cheerleading and now I can barely take a simple bath without being exhausted. I need help, I'm scared, depressed and desperate for answers!
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