Thread: Fanfaire?
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Old 12-05-2007, 06:00 PM
MelodyL's Avatar
MelodyL MelodyL is offline
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Join Date: Aug 2006
Posts: 8,292
15 yr Member
MelodyL MelodyL is offline
Wise Elder
MelodyL's Avatar
 
Join Date: Aug 2006
Posts: 8,292
15 yr Member
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Would you like to hear how many physicians looked us in the face and said "Neuropathy is not, has not and could NEVER BE inherited???

I can't even count, there have been so many. In all the 18 years since Alan first got it between his toes.

The only doctor who made any sense was at the very last neuropathy support group Alan and I attended last month.

I was sitting next to her and I said "do you know how many people I have told that Alan's mom had Guillian Barre and every single one said "oh, it can't be connected, you can't inherit Neuropathy". And this darling doctor said "I would never be so (I can't exactly remember the word she used but I know she meant to imply "I could never be so uneducated as to make that statement).

She was the only neurosurgeon I have spoken to that is doing research into the complex causes of neuropathy. And she listened....to everybody.... at that meeting.

I wish more doctors would do that.
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