Thread: Fanfaire?
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Old 12-07-2007, 04:32 PM
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Join Date: Aug 2007
Location: Little house on the prairie
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fanfaire fanfaire is offline
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Join Date: Aug 2007
Location: Little house on the prairie
Posts: 179
15 yr Member
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Hi! Sneaking in a short reply before my neuro consult. Sat around 4 hours today waiting to get in to the ENT consult, but they couldn't fit me in.

They've decided against a nerve biopsy for now. Will be asking if my diabetes might have caused the neuropathy. I've had the diabetes under excellent control since 3/2005, so maybe that has improved the situation?

The tilt table test was interesting. They had a hard time getting my hands and feet warm enough; I don't know why that's important, but they had to put heat packs on all my limbs. My blood pressure did drop when I was tilted, but I don't know how much it has to drop to be considered abnormal.

Did the TEE (can't remember how to spell what it stands for) this morning, the heart ultrasound with the camera in a tube down the throat. They were careful about the amount of sedation since I react to it sometimes, so I was mostly awake for it. I overheard them talking about something on the screen and I could kinda see it, but I was too out of it to really comprehend if there was a problem or not.

Unfortunately, I have three consults left but no time left this week. The ENT consult wasn't until next Thursday, and the other two are in January. So I am going home this weekend, I have rescheduled the ENT consult for the same date as the pulmonary one, and I will come back here January 2nd because my husband has New Year's Day off and we can use it as a travel day, and I will try to squeeze in the final appointment with the rheumatologist on the 2nd if possible.

Unless the neuro finds something new this afternoon or the ENT dreams something up, I am all done with tests. So that's something.

Better go get ready to see Dr. Uhm.

fanfaire
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Sjogren's, neuropathy, gastroparesis, diabetes, celiac, Raynaud's, hypothyroidism, fibromyalgia, chronic myofascial pain, periodic limb movement disorder
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