Thanks, Cindy! Wish I had a neuro to go to. I am currently between neuro's. My GP keeps me in Mestinon. She is on the lookout for an MG specialist that isn't too far away, but feels that unless and until we find one, I'm better off not going to one of our local neuro's who know really next to nothing about MG. The last 2 she sent me to tried to throw me back into diagnostic limbo, although I was diagnosed by an MG specialist over 30 years ago. It's as if every neuro has to make the diagnosis for himself, and if you aren't classical MG, you just don't fit their mold. I'm sero-negative, and was told by the last neuro that I couldn't have MG because "only purely occular myasthenics are sero-negative". So you see what I'm up against. My GP feels it's better to wait and try to find a specialist if I need to see a neuro, than to keep "shopping" for one who will accept the diagnosis or who knows enough about MG to realize it's a very individualized disease. Meanwhile, she keeps trying to educate herself on MG (she has two patients with MG), and is always grateful for any info I can glean for her and print off from my research online. Unfortunately, as a GP, the only medication she can give me is MEstinon, which is fine by me, since the neuro before the last 2 she sent me to did agree with the MG diagnosis, gave me Dexamethasone, which provoked a myasthenic crisis. I've not been the same since.
Ah, well, we survive as best we can.
Hugs,