Roxie, between Interstitial Cystitis and neuropathy, you have been dealt one lousy hand.
I know about the agony of Interstitial Cystitis because I had all those symptoms (years ago) for over 4 years. I thought I would lose my mind.
That pressure (down there), where you feel like you have to urinate, and then you urinate just fine, but the pressure is still there.
I do not know how I survived that. But I'll never forget that one day while the hot water was showering down upon me in the shower. It all went away. After all those years. I used to use heating pads. I went to doc after doc, specialist after specialist, I took sonograms, cystoscopes, trans vaginal this and that.
They found NOTHING!!!
They believed me because they knew I was miserable. Only one time, when they gave me the uring test, did they actually find an infection, and antibiotics cleared that up, But for most of those 4 to 5 years, there was no infection, just those horrible symptoms.
I don't know how you survive all of this. My hat is off to you, please know that.