what you mean? But if you mean that a delay in the infusions has led to a sort of relapse? Yep I do know that whole set of 'feelings'. It is, one scary set of feelings.
Once you get back on schedule, you should feel better? I think you get yours weekly? If so, it mite take two weeks' worth of infusions, for me, I get mine monthly and once I get infused, it does take me a bit longer to 'bounce back' to my better self. I suggest tho, since you are being scheduled for surgery soon? Talk long and hard to your IVIG prescribing doc and the surgeon + anathesiologist to be sure you are all on the EXACT same page about infusion timing ....to get the best IG benefit for you before and after the surgery. No sense in having all those globulins going to work on the wrong 'job' so to speak. For my own surgeries in the last year plus, I made it clear if they didn't play MY WAY [safely] I wasn't gonna play. I hope this helps even a little bit. Good luck trying to get the docs understanding things tho...that is the hardest part. - j