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Magnate
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Join Date: Nov 2006
Posts: 2,088
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Magnate
Join Date: Nov 2006
Posts: 2,088
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Hi Kes,
One thing you might do is tell the group what area you live in or state and we may have someone in that area that knows of treatments near you.
I would recommend blocks. I think they are one of the best ways to try and put the RSD into remission. Some say it has to be early in the diagnoses but I have found that not to be true. I have seen people around my area with RSD that has done good with blocks after years of RSD.
Another thing is PT. I had good PTers. They should be very aware of RSD and know how to work with you with it. Some thing agressive PT is the answer. When I first started with this around 98, I was so bad bodywise that I could not have done the agressive PT. My Drs. disagreed with it also. I just don't think you should be over exercised to get to the point of getting better.
I also had triggerpoint injections. I think a couple of others here have had them. They have worked good for me. It is a time consuming thing. I had shots for over 4 years every place I needed them but they worked. My Dr. used lidocaine, mericaine, and ketamine. He did one steroid shot and decided not to do anymore of them. Those I was told you could only have 3 of them a year.
As far as meds, I have tried most all of them. Most I could not take anyway. I am on Methadone for the pain and also use lidocaine patches. I do fine with those but it took me years to get to where I could.
I know what the road you have is like. I spent almost 4 years in PT to get me to where I am. I started out with my back, then TOS and Fibro then the RSD.
My RSD is worse right now is my arm, hand, right foot, and pelvic area.
I know there will be others come on here with some good advice that will help you. Hang around.
Ada
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