Thanks for sharing your story Color. What you have been thru is truly scary and I admire your willingness to continue with the testing. What you are doing will benefit a lot of people. We need more people like you on this planet....and it would be a

You can see by the slow start on this thread, how difficult a topic this is for people.

I think people are confused by just the word genetics, let alone all the autosomal dominant, sex linked, autosomal recessive stuff. I still have trouble drawing a Punnit Square..I think I spelled that wrong.

I think people also are afraid of hereditary and genetic neurological diagoses, because they fear having a disease they can't treat (even tho many of the neuropathies are untreatable because we really don't know the cause.)

Some people see genetic diseases as somehow disgracing the family. (In my family we do that well enough without any diseases.)

I think people are afraid of a lot of different things....discrimination, passing things on to their kids, telling family members if something is discovered etc. You have gone thru a lot of this testing and these issues, bravely.

This is where I hope people can come and get personal stories, information, and courage.....plus a few laughs....(I am in this thread...it is part of my genetic make-up)

Thanks for sharing your experience.