Avery, I saw your post mixed in with Desi's question and just wanted to send a quick reply. It sounds like you have been through a lot and my heart goes out to you. I think we all struggle with the issue of medication, and I know for myself it is a huge issue as I hate the meds.....and hate more that I need them. I don't often realize how much I need them untill I go off them and my body tells me rather quickly. I think like anything with RSD, the trick is to find a balance that works for you....in activity and in medication. This can really take some time, and can change. I know there are times when I have gone off meds and had the notion that I can get through it on sheer willpower alone, but then I realize that I am not being kind to myself. Keep plugging till you find something that you can live with, and have you own balance. Keep us poted and you will be in my thoughts.
Gentle huggs
Kimberly