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Old 12-12-2007, 03:55 PM
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Ellie Ellie is offline
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15 yr Member
Ellie Ellie is offline
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Ellie's Avatar
 
Join Date: Sep 2006
Posts: 1,228
15 yr Member
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What testing have you had done for infectious diseases? If they suspect an infectious disease they should avoid any product with steroids in it at all costs as this can suppress your immune system and typically in Lyme and/or Co-infections cause some serious side effects.

As you said it may have been a tick, do you recall when this may have taken place and did they do any testing for Lyme Disease (although testing isn't reliable, it can help sometimes)? Also, if it was suspected did they test for any co-infections such as: Babesia, Bartonella, Ehrlichiosis, Mycoplasma, and Rickettsias.

Below is a partial symptom list for each (there's so many it would take a month to compile). (From anapsid.com)

The following symptoms were excerpted from Diagnostic Hints And Treatment Guidelines For Lyme And Other Tick Borne Illnesses, by Joseph J. Burrascano Jr., M.D. (Fourteenth Edition, November, 2002).

Borrelia
(Borreliosis, neuroborreliosis; also known as Lyme Disease)
Spread primarily though the bite of infected ticks that live on a wide range of mammalian species; secondary human-to-human transmission through semen, breast milk, and possibly in utero

Bladder dysfunction
Burning or stabbing sensations
Cardiac impairment
Change in bowel function
Chest pain
Confusion
Depression
Difficulty thinking
Difficulty with concentration and reading
Difficulty with speech, writing
Difficulty finding words; name blocking
Disorientation: getting lost, going to wrong places
Disturbed sleep: too much, too little, fractionated, early awakening
Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity
Exaggerated symptoms or worse hangover from alcohol
Eyes/Vision: double, blurry, increased floaters, light sensitivity
Facial paralysis (Bell's palsy)
Fatigue, tiredness, poor stamina
Forgetfulness
Headache
Heart block
Heart murmur
Heart palpitations
Heart valve prolapse
Increased motion sickness
Irritability
Irritable bladder
Joint pain or swelling
Lightheadedness
Mood swings
Muscle pain or cramps
Neck creaks & cracks
Neck stiffness, pain
Numbness
Pelvic pain
Poor attention
Poor balance
Poor short-term memory
Problem absorbing new information
Pulse skips
Rib soreness
Sexual dysfunction or loss of libido
Shooting pains
Shortness of breath; cough
Skin hypersensitivity
Sore throat
Stiffness of the joints or back
Swollen glands
Testicular pain
Tingling
Tremor
Twitching of the face or other muscles
Unavoidable need to sit or lay down
Unexplained breast pain
Unexplained fevers, sweats, chills or flushing
Unexplained hair loss
Unexplained menstrual irregularity'
Unexplained milk production
Unexplained weight loss or gain
Upset Stomach or abdominal pain
Vertigo
Wooziness



Babesia
(Babesiosis)
Babesia is a protozoan spread by ticks, blood transfusion, and in utero. Despite there being 13 known forms to date, current testing only looks for two of them.

Air hunger
Cough
Fatigue
Fevers
Headache
Hemolysis
Imbalance without true vertigo
Mild encephalopathy
Shaking chills
Sweats



Bartonella
(Bartonellosis, also known as cat scratch fever)
Spread by bites from infected ticks and in utero

abnormal liver enzymes
encephalopathy
endocarditis
flu-like malaise
headache
hemolysis with anemia
hepatomegaly
high fever
immune deficiency
jaundice
lymphadenopathy
myalgias
myocarditis
papular or angiomatous rash
somnolence
sore throat
splenomegaly
weakened immune response



Ehrlichia
(Ehrlichiosis)
Bites from infected ticks

elevated liver enzymes
headaches
myalgias
ongoing fatigue
persistent leukopenia
thrombocytopenia


Mycoplasma <-Link


Below is a long read, albeit a good one.

http://www.ilads.org/files/burrascano_0905.pdf


Anyway, sorry for the overload of information there. I'm sure you've found most online anyway. I will, however, stress again that if there's a sign of an active infection - no matter the type, I would avoid steroids at all costs. Considering your past reactions, that's a pretty good sign something is going on.

Some insurances pay for it, some don't - but I think considering your symptoms you'd be a good candidate for a SPECT scan. I'm not familiar with all places that specialize in looking for damage specifically cause by infectious disease but I know the AMEN clinic and another one around San Diego do. I could check with some friends to get more information if need be.

It's expensive but if you haven't done it I heard the co-infection panel at Fry Lab is pretty great and the Lyme testing through IGeneX is also more accurate than most. The Fry testing is $495.00 and my insurance paid 60% back - IGenex Lyme Panel was ~$400 and my insurance also reimbursed 60%. From my personal research Fry Laboratories testing for co-infections was the best and IGenex for Lyme was the best. I got 1 positive and 3 negatives with the standard ELISA and Western Blot from 4 different labs, IGenex came back with a very straight forward positive. Fry also gives two pictures back, they look at the blood under a microscope and will send pictures of the actual parasites, it's gross but pretty cool!

Links:
http://frylaboratories.com/photos.html
http://igenex.com/
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