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Old 12-14-2007, 12:32 PM
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HSPCraig HSPCraig is offline
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Join Date: Nov 2007
Location: Richmond, Virginia
Posts: 177
15 yr Member
HSPCraig HSPCraig is offline
Member
HSPCraig's Avatar
 
Join Date: Nov 2007
Location: Richmond, Virginia
Posts: 177
15 yr Member
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OK Sally, you asked for it!

After getting over the shock of my HSP diagnosis and no longer having an MS diagnosis, things have been a challenge.

Currently I use Canadian crutches to get around outside the home. Legs, hips, lower back, and arms are noticably weaker. I can't stand as long as I used to even with the crutches. Any long walks are accomplished with a store motorized cart or wheelchair on boardwalks and malls.

Many sensory symptoms very similar to MS severe cases. Cognitive is always a challenge everyday. I just go with the flow and take the symptoms as they come.

Again, thank you for letting me be a part of this forum. It is such a big help.
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Craig Mattice
"Live Like You Mean It!"

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Dx'd 12/00 w/RRMS
Dx'd 05/01 w/SPMS
03/05 Rescinded MS Dx Neuro thinks something else
03/06 New Dx of Hereditary Spastic Paraplegia (HSP)
Rare deteriorating motor neuron disease. No cure. No Treatments.
Only 20,000 Dx'd patients in US
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