Magnate
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Join Date: Aug 2006
Location: metro DC suburbs
Posts: 2,576
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Magnate
Join Date: Aug 2006
Location: metro DC suburbs
Posts: 2,576
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Jarratt I have seen this site...
and, there's lots of good basic info in it.
I do get a bit well, 'queasy' when any 'non-profit' site essentially SELLS its key info tho. But, I have that 'feeling' about any non-profit which essentially withholds information EXCEPT to contributors or members.. This is in part because I used to be a gummint grant administrator in a prior life and the standards can be definitely different to members for certain programs than for non-members. I was careful in my oversight to ensure than participants in gummint sponsored programs were more democratic, and not exclusively 'members'. I balk at non-profits who will only SELL info, with out a good sneak peek. IF info is really good, and beyond basic then, maybe would I want to buy more! Leading to a membership. NORD is an organization that gives freely and also has a quality rating by non-profit givers, for an example. Some other organizations relating to our PN and auxillary issues aren't so open nor forthcoming.
NORD's 'theme quote' is aptly: If you hear hoofbeats it might be a zebra? Not a horse.
The Pain Foundation that I believe Alkymyst cited in an earlier post is a super resource for all kinds of pain! And the folks there are doing THE key researches WE need to get diagnosed and treated properly! This is one dynamic group that would get bucks from me...when I ever win that Lottery or the like! [As would NORD & here if asked] I don't know about you, but I find I have to be a lot more parsimonious these days, where I used to contribute to all sorts of good organizations, I have to be far more picky and careful about who I give any bucks to ...be it membership or otherwise. I want as much bang for buck as my few bucks can give.
Think of it this way? IF an organization provides an annual financial report on it's site and a full list of board members and consultants [current and past] and you feel that they are actually doing what they state as a 'mission' -by all means GIVE! Should info be absent, ask for it? Even a $10. gift should receive the courtesy of a reply. Hope this is useful a bit. - j
And YES we look 'fine'? But, those eyes are a bit drawn, and the mouth has well, new 'lines' around it, not to mention that hardly detectable 'teeter'?
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