Hi Ada.. big ((((hugs))))

I am so sory you are going through this with your VNS.. I found it somewhat disturbing my friend when you said it was permanent so I tried to research it and I got some pretty conflicting reports.. I have posted some links below.. did you know that some leads were recalled recently?

Medical Device Recalls Class 2 Recall VNS System Leads: (Nov 28 07)
http://www.accessdata.fda.gov/script...s.cfm?ID=52219

This one says that the leads can't be removed but the bulkier parts can.
http://www.depression-therapy.com/va...timulation.htm

This one says the leads CAN be safely removed from the vagus nerve.
http://www.ifess.org/INS_WSSFN_2005/...STRACT/177.pdf

Hugs bud I know the season is hard on you bein full of memorys an all, might the VNS be too high now?.. kinda like it will only do so much.. and turning it higher is mabie just irratating the nerves now?.. I am just guessing but mabie it is helping more than you know.. and to go past that certain point is just overkill on the vagus nerve and irratating the CRPS.

I may be way off base and you know I am no doctor but I just thought I'd send hugs and links and a thought your way, I know christmas can be a very hard time for some people and you have alot on your plate right now hon.. and you have to give you credit where it is due..(I will) with you my friend.. I admire and respect you so much Ada and I so wish I could help you more through this time.


Sandra