In Remembrance
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Join Date: Aug 2006
Posts: 1,002
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In Remembrance
Join Date: Aug 2006
Posts: 1,002
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I am going to talk with my pain mgt. doctor about:
getting a digestion aid medication (but making sure it is not going to cause another illness, as did the Lyrica and the Topomax.)
I am sleeping with my upper body elevated. MANY TOSers have reported needing to sleep in a recliner to control their symptoms...so this is a slight help.
I need to get a rescheduling to a good rheumatologist (last time was 3 years ago) and make sure no immune / rheumy illnesses can be detected. If so, I want immediate help to try to fight them.
I see a direct connection between TOS progression, RSD and this autonomic neuropathy...why an ER doc couldn't make the diagnosis / connection I honestly don't get, because I am not a doctor, just a legal person! But the symptoms are so spot-on, I hate to self-diagnose, but now I have this to bring up to my next doctor's appt.
God bless.
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