Hi,

It's been a while since I last posted. I'm doing very well. Cognitively and physically improving. Energy level is pretty good.

I had a shock the other day. I received the first of the cost breakdowns that my insurance company gets from the hospital. For each treatment of Tysabri, the hospital is charging $13,000. yes, that's thirteen with three big o's on the end. That's almost $160,000 dollars a year yor me to get the treatment.

Thought you might need to know this. Im still gasping and coughing. Yes my insurance company is paying for it, but if I ever lose my insurance I'm going to be in huge trouble--even more so because of the potential for disease rebound on this drug. With MS you never know when you might not be able to work anymore--leading to loss of insurance--eading to loss of treatment--leading to loss of all gains and a three to five times rebound in the disease.

this cost factor is big. Check with your infusion provider before starting the drug. There is only one in my county.

Katty