Your post came at a great time for me, and I appreciate yo writing it. First of all, welcome back! Not wb cuz of the pian, but welcome back to a group of people who understand the pain and frustration we deal with. It's so good to have each other.
I have just started experiencing symptoms in the past few months. I am still trying very hard to be "normal" and want to get back to work desperately. Reading your post helps me keep things in perspective...and drives it home that when I do go back to work (hopefully soon!) , that I need to keep my condition in mind, and try to do everything I can to take it easy, use proper posture methods and not to take on too much.
Oh! and I second Jo's suggestion....pillows and heat are our gift from God.