I am sure you are very frustrated. All you can do is start wading thru some of this info...This is the best place to start. It is a lot of info, very intimidating, but, it is not unusual that many of us have brought up tests and possibilities to our docs....(and we sometimes come up empty handed) I can assure you, there is an end of the internet on some diseases....I have reached it. There is a point when you get to all that current medical science has to offer...as of today. It changes every day as new discoveries are made.
http://www.neuro.wustl.edu/neuromuscular/naltbrain.html
http://www.neuro.wustl.edu/neuromusc...yaltbrain.html
http://www.neuro.wustl.edu/neuromuscular/maltbrain.html
http://www.neuro.wustl.edu/neuromuscular/synmg.html
http://www.neuro.wustl.edu/neuromusc...ia/aindex.html
http://www.neuro.wustl.edu/neuromusc...labdis.html#Ab
http://www.neuro.wustl.edu/neuromusc...r/resource.htm