View Single Post
Old 12-20-2007, 07:02 AM
glenntaj glenntaj is offline
Magnate
 
Join Date: Aug 2006
Location: Queens, NY
Posts: 2,857
15 yr Member
glenntaj glenntaj is offline
Magnate
 
Join Date: Aug 2006
Location: Queens, NY
Posts: 2,857
15 yr Member
Default There are a number of tertiary centers--

--that are involved in the research of neuropathy--Jacksonville Shands in Florida, the Cornell-Weill Center for Peripheral Neuropathy in NYC, the Jack Miller Center in Chicago, Massachusetts General, Johns Hopkins in Baltimore, the Mayo Clinics (Rochester Minnesota, Arizona, Jacksonville)--all depends on where you live, how far you'd be willing to travel . . .

It does seem, by what you've been revealing in the posts, that you have a lot going on. From what I've read about Wolf Parkinson's, that may certainly be related to genetically abnormal nerve pathways.

Could you sort of give us a timeline as to when the various conditions showed up, how they manifested, etc.? How and when did your neuropathic symptoms come on, and how was it determined that it was small fiber (were autonomic, quantitative testing, skin biopsies done)?

Last edited by glenntaj; 12-20-2007 at 05:03 PM.
glenntaj is offline   Reply With QuoteReply With Quote