Hi Malissa,
Welcome to Neurotalk.
My name is Alison, I am 12 years old and I suffer from RSD/CRPS in my left leg and right arm. I first developed RSD in my leg in March 2007 after an ankle sprain, I was diagnosed with RSD 4 months later.
2 months after diagnosis I was prescribed Amitriptyline, and I suffered a nasty side effect of "blurred vision" which resulted in a knock to my right arm, I was later diagnosed with RSD. The RSD in my arm's been in remission, but unfortunatley I knocked my arm on Sunday and the RSD's flaired back up.
Where does Jennifer suffer from RSD?
I don't know a lot about the Ketamine infusion, but I have heard that it CAN be very useful. A 17 year old girl called Vanessa who suffers from full body RSD is hoping to get the "Ketamine coma treatment" soon. This will give Vanessa an 80% chance of getting better.
You are such an inspirational person, I am so proud of what you are doing, I know how heard dealing with RSD is. My mom is my full time carer. My moms dealt with a lot of neurological diseases during her life including MS and Parkinsons disease. I am so grateful for everything she's done for me.
I know that not many people are on Neurotalk at the moment, but people should start coming back on after the Christmas period.
Take care
Love
Alison