Quote:
Originally Posted by glenntaj
--you produced a great and well-reasoned summary.
It will be interesting to see exactly what the test results show--be sure to get copies and report on them then.
I'm intrigued by those little plaques--they are common with migraine, which is now considered by many to be a type of seizure disorder, but there may be a chicken-and-egg aspect to how they got there, as you've mentioned.
Then, too, Sjogren's is increasingly being recognized as a body-wide illness, like Celiac and lupus--even thought he hallmark is an attack on the moisture producing membranes, both central nervous system and peripheral nervous system debilitation has been documented (though too many doctors out there haven't kept up on their continuing medical education regarding this). There is the possibility that the plaques are related directly to the Sjogren's antibodies. The Washington University website mentions this:
http://www.neuro.wustl.edu/NEUROMUSC...n.html#sjogren
--and I know there's been some speculation that the plaques resemble some found in MS . . .
At any rate, glad you made it through in bascially unbowed fashion. |
Yeah, the plaques intrigue me too. I was tested for MS on three separate occasions starting in 1998, and nothing at all showed up then. The neurologists in Denver were basically treating me like a hypochondriac until my biopsy in 2003 showed I did have an autoimmune condition, just not the one they were expecting.
I hope research on these disorders continues and that someday doctors will be able to connnect the dots. Then there will be a lot fewer patients being shuffled off to shrinks because the neurologist has no idea what might be wrong.
fanfaire
