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Old 12-20-2007, 11:45 PM
love2laugh love2laugh is offline
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Join Date: Jul 2007
Location: California
Posts: 116
15 yr Member
love2laugh love2laugh is offline
Member
 
Join Date: Jul 2007
Location: California
Posts: 116
15 yr Member
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Sorry its taken me a little while to get back to you....

To answer your question about how I know I am having an "off" day-- well, honestly, its hard to describe. Please forgive me if you have already mentioned this, but there are many the factors that come into play--at least for me, and things that sort of give me an idea of what is normal and what is not. Honestly, most of the "knowing your body" is just about time and experience. So, I guess my questions to you are-- how long have you had seizures, what types, how your meds make you feel and what not. Theese questions are not something you have to answer on the forums, but more just to think about. It can often take a lot of time to get to know your body and patience and experiencing things-- so, if you are fairly new to the journey, you may not-- and that is completely OK. To give you some insight on me-- I have very frequent seizures-- some where I loose awareness, some where I do not, have been on meds for a long time-- and most of my current ones at least a year, and have been dealing with the epilepsy stuff for 14 years. It took a good while to figure out my "norm" --- med side effects, etc and not norm-- my "off days".

Now that I have thoroughly confused you, some of my signs it is an off day is dizziness/ataxia that is unlike med side effects, feeling spacey, missing parts of conversations and being in my own little world per say. I also have auras which preceed my seizures which usually consist of at least funny feeling in my stomache and can occur for hours to minutes to seconds before the seizure, so that is my "warning" sign to be careful and/or take special precautions.

(Do keep in mind though, that not everyone has auras)

That is not to say my life is put on hold during my off days, but rather I just take extra steps when doing my every day things-- whether it be having a friend with me when I excersise or do other active things; babyproofing thinsg when I am babysitting, or if I am alone not taking baths (but rather showers instead), using the stove and other such things.

Hang in there !
L2L
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