I really think I am finally getting better!

Yes Cara it has been a long haul but I do believe all this info on how quickly you will feel good, is really outdated. Maybe for the people that feel great and suddenly get the disease and are diagnosed quickly...maybe they feel great, but it seems that for the majority it takes many months.

I really don't think it was hidden gluten mainly because I am eating all the same things. Also, my husband is also eating the same things and his AGA's went down to 5 already from 20 and 28 while mine are still positive. I am hoping my next tests will show a major improvement.

The strange thing with my husband though is his weird tTG numbers. He started out with 18 out of 20 and that was on a semi gf diet, I had the house almost GF for 8 months. Then he and my youngest were eating a 1/2 bagel a day and both their tTG's went down and they were tested on the same day at the same lab. Once they started their true gluten free diet, both tTG's went back up. So husband went from 18 (pre gf) to 11 (challange) and is now at 14 (totally gf for 4 months). I don't trust the lab that is doing our tests because I have seen different messages like...wrong cap, redo test...another spilled blood, not enough to do test (this one I was never informed of...it was for me and my last Gliadin tests..I thought about making a stink but decided my tTG's were still positive so they would be too.)

The strange thing is with all this is, I thought your tTG's went down before the gliadins...hmmmm

My husband and daughter seem to be following the pattern of feeling much better and now not so good. I accidentally let my husband and I get glutened at a picnic with Turkey cooked in a deep fryer. I checked all the seasonings and was quite pleased we could eat it. I totally forgot about the injection until on the way home. I didn't say anything hoping it wasn't injected but the next day I had MG symptoms and my husband was extremely sick feeling like he had rocks in his stomach. The only good out of this was my husband finally realized he does have Celiac. It took him about 1 week to feel better.

I am really looking forward to the NY conference with Anne and hope to obtain some very valuable information. Hopefully Anne will take the notes because I am still having a little problem with that.

Oh, and the neat thing I am doing now is this mini-medical class at the NEOUCOM. It is about the brain. We are tought like medical students only we don't have to read 100's of pages before the class. I will post later about what I have learned and the sad things that should have been discussed and are not. I have one class left on Thursday and then I can hang out my shingle...LOL.

Valerie, I am so sorry about your loss, you are in my prayers.



I have hardly been at work for months but have now started going for a few hours every day. It is fun to be able to sit at my desk without feeling like I need to lie on the floor to get some energy.

I do still have lingering weakness in my legs and chest muscles. My walk is still slow even though I think I am walking normal. I am still afraid to exercise as everytime I do something happens to set me back. About 3 weeks ago I went to curves and only did one rotation at a very slow pace and still pulled some ligament on the side of my knee which still isn't 100%.