Hi Oregon Girl,
I guess things are a bit slow here because of the holidays. I hope you don't feel neglected as that will not be the case.
If I were you, I would place some calls to several of the TOS Specialists listed and ask if THEY could recommend someone in your area. There are not a lot of TOS specialists, so it should be a 'small world' for them.
Try not to be discouraged, this is almost always a long road from symptoms to diagnosis.
Hope you can enjoy a peaceful holiday week and healthy new year.
Warmly,
Anne