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Old 12-26-2007, 02:53 PM
PCS McGee PCS McGee is offline
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Join Date: May 2007
Posts: 96
15 yr Member
PCS McGee PCS McGee is offline
Junior Member
 
Join Date: May 2007
Posts: 96
15 yr Member
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Quote:
Originally Posted by JiNXy View Post

1. Is it even possible for PCS symptoms to lie entirely dormant for weeks and then suddenly wreak havoc on a person?
2. Does this even sound remotely like PCS, or am I just completely losing my mind altogether?
3. If I were to have an MRI now, so much later, would it even show anything?
4. Would a CT scan now compared to the one I had right after I was knocked out show any differences since I have all these crazy symptoms now that I didn't then?
If it IS PCS:
5. How do I know for sure if there's really no test for it?
6. Is it absolutely necessary to see a doctor about it, or is it possible to fix everything myself?
7. Can a GP/family doctor treat this, or does it require a neurologist or something else?
8. Does it mean anything in the long run that there was such a delay in the onset of symptoms? Like for most people the symptoms are immediately after the concussion, last a while, and gradually get better...since I had very few and mild symptoms immediately after, then a period of no problems and then suddenly all of this, does that mean this is what I'm stuck with now?
9. Did I bring this on myself by continuing the tour immediately after sustaining a grade 3 concussion?
If it's NOT PCS:
10. Does anyone have ANY idea what might be going on with me? Some days I'm worried that I really might be losing my mind!
1. Yes, that's entirely possible. My symptoms didn't really appear until 12 hours after my concussion, and didn't get really bad until weeks later.

2. It not only sounds remotely like PCS, it sounds exactly like PCS. Rest assured, that's what you've got.

3. Having an MRI would probably not be of much benefit to you, but I'll get into that in a second.

4. It's extremely unlikely that a new CT scan would show anything beyond what your first one did (which, as I understand it, is nothing). A CT scan is an extremely primitive tool for diagnosing problems with the brain, as it can only show whether appreciable brain mass has been lost (this is typically only the case in catastrophic brain injuries, the type that would leave a person in a coma for a day or more). MRIs can show a little more, and fMRIs can show the brain in astounding detail, but all of these tests are ridiculously expensive if you're paying out of pocket (particularly fMRIs), and they wouldn't do you any significant amount of good (once again, I'll get to that in a second).

5. There is no benchmark test for PCS; doctors can test your memory, balance, and comprehension skills, but they can't test for the condition itself. That is to say, they can't test for PCS the same way they can test for mono or HIV (blood and saliva testing), they can only say "this patient seems to exhibit symptoms of PCS", and that's about it. There are probably doctors out there who would argue that I don't have PCS, and there are probably doctors out there who would argue that you don't have PCS either. We in the business of concussions call these doctors "idiots". There's a lot of idiots in the medical community.

6. Some people on here may disagree with me, but personally, I would argue that it's entirely unnecessary to see a doctor about what's going on with you. In fact, I can provide every ounce of information right now that a normal doctor (as well as many neurologists, neuropsychiatrists, and neuropsychologists) would give to you if you set up an appointment with them:

"Oh, you had a concussion? Persisting symptoms, huh? Well, get lots of sleep, drink plenty of water, and stay off the alcohol for a while." As he left the office, he'd likely also add "hey, and take care of yourself, mmkay?" Then he'd wink at you. Doctors appointment over! Hooray!

The thing is, there's nothing that a traditional MD, or a neurologist, or anyone else in the field of western medicine can do to make your brain heal, it needs to do that on its own (though there are people who can help it do that on its own). There aren't pills for PCS, and there isn't a surgery for it, so there's really nothing western medicine can do to help you (other than possibly providing peace of mind). A neurologist could map out all of your current deficiencies, but that would be the end of their "help". Unfortunately, when it comes to brain issues, western medicine is more than proficient in DIAGNOSING problems with the brain, but they can do absolutely nothing when it comes to HEALING them. It sucks for concussions, basically.

7. A GP/family doctor is not going to do someone with symptoms like yours very much good (they might be of benefit if you were constantly falling over, passing out all the time, or throwing up 9 times a day, but your symptoms are a bit too subtle/ambiguous for western med), nor is a neurologist, but we just went over that.

8. You are not stuck with this, trust me you WILL heal from this, and you're not in any more trouble because your symptoms came on later than "normal".

9. No, you didn't bring this on yourself by continuing on with the tour. You just did what comes naturally to people, you tried to continue living your life the way you were used to living it. It's perfectly natural, and you have done yourself no further harm by doing so.

Oh, and you're not losing your mind, but PCS can feel like that sometimes. Once the condition is resolved, all of that will go away.

So this was probably a downer of a post for you to read, but I figure a person such as yourself would rather get information given to them straight than just receive a bunch of "Hi, get well! " comments.

That said, and this is the good news, there are things you CAN do to help yourself heal faster. First off, take the random doctor's advice and do sleep when your body wants to sleep, drink plenty of water, don't overexert yourself, and stay off the alcohol until you feel like yourself again. You might want to consider taking some fish flax oil as a daily supplement, as flax oils are great for the brain.

If you're able to do so, I would STRONGLY suggest that you also consider going to see a craniosacral therapist - if you can find an experienced one, these people can work MIRACLES with concussions (I sincerely wish I had known they existed earlier in my recovery, seeing a craniosacral specialist within weeks of my injury could have saved me years of grief). If you can't find a craniosacral therapist, try to find a cranial osteopath (these guys are traditional MDs, but can do some very good work with concussions).

Those are my primary suggestions, but you can feel free to send me a message if you want more info.
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