Hello all, My name is Carla and I have recently been diagnosed with TOS. My hardest part about this is dealing with the pain and trying to get my Dr. to listen to me and hear the pain I have. It is so frustrating, the Dr. only gives pain meds if you have surgery, but I'm not bad enough to need surgery.So what do I do? I don't know where else to turn,no one understands when I try to explain it,they just say "Get a new Dr. or just ask him for pain Meds" if they only knew how hard it is to get your Dr. to listen to you let alone understand you.I'm sick&tired of not sleeping due to pain,driving in pain, doing my daily things with the pain. I hope someone out there can help me figure out how to get my Dr. to listen to me, and stop sending me for MRI's or EMGs.I have been off work since the 28th of Sept.