When I was having my last ketamine infusion I had a really bad flareup- I couldn't sit still, I was crying and rocking around and breathing slowly (like through a contraction) to stop myself tensing up etc. The nurse asked me my pain level. I said it was an 8. She said "Only an 8?" I told her I've had 10's and this wasn't a ten.

Yet my SIL (for example) who is very healthy and has even climbed Mount Everest has been complaining about ankle pain from walking on concrete floors all day at work. She says she's in tears every night and having the worst pain imaginable in her ankles.

So it very hard to gauge, as I'm sure her ankle pain is the same as I get in my rsd ankle at about a 4/10- what I put up with everyday- yet to her its the end of the world!

x Kate