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Old 12-30-2007, 10:03 PM
shawn33 shawn33 is offline
Junior Member
 
Join Date: Dec 2007
Location: Pasadena, California
Posts: 48
15 yr Member
shawn33 shawn33 is offline
Junior Member
 
Join Date: Dec 2007
Location: Pasadena, California
Posts: 48
15 yr Member
Default I know what you're going through

Hi there,

I know what you're going through. I have had seizures for 15 years now, and they got worse from simple partial to grand mal last year. So now I have simple partial, complex partial (petit mal), and grand mal. I've been on every medication on the market, and NONE of them have helped me. I've also had 2 brain surgeries, and the VNS, and I'm still having all the seizures. So it's probably not your neurologist, you probably have severe epilepsy just like me. Currently I'm in the research study for the RNS, and that has helped some. It's reduced the amount by 50%, but they have yet to be controled.
I read about this one man that was born with seizures. He had them until he was 94 years old. When he was 94 is when they finally discovered the new med that got his under control. So we may need a medical device, or a med that might take a while to find.

Sincerely
shawn33
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