Thread: Myoclonus
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Old 10-02-2006, 01:51 PM
Buttons Buttons is offline
Junior Member
 
Join Date: Sep 2006
Posts: 78
15 yr Member
Buttons Buttons is offline
Junior Member
 
Join Date: Sep 2006
Posts: 78
15 yr Member
Default Good to see you here!

Hi there, yes I recall your wife & what she has been through. Question-what kind of injection into the spine? How long has this procedure been done? Is this for research? Any cost to you? What does her doc think of this?

Has she had ANY improvement at all?

When I was first diagnosed with myoclonus by a neuro I was relieved to have an actual word for my condition. Prior to the brain & spine MRI's I was referred to a ortheopedic (sp) clinic,they took one look at me & said Parkinson's, then scheduled me for steroid shot in my spine! since I'm a diabetic I researched steroids & diabetes & decided not to go for the shot-lucky thing I did cause steroids would have made my REAL problem (Lyme disease) sooooo much worse!

I know you are desperate for relief, just want to throw out a big caution for trying something "new".

What really gets me is that we aren't told WHAT CAUSES the myoclonus. In your wife's case it was the epidural, are they thinking another shot in the spine will reverse the damage??

This is interesting & I wish the best for you-keep us updated please!

Take care,Buttons
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