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Old 01-01-2008, 01:14 PM
cynwldkat cynwldkat is offline
Junior Member
 
Join Date: Dec 2007
Posts: 11
15 yr Member
cynwldkat cynwldkat is offline
Junior Member
 
Join Date: Dec 2007
Posts: 11
15 yr Member
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Quote:
Originally Posted by GodDreamer2007 View Post
Hi, how old is your sister, and how long has she been on her meds? Prednisone can cause thinning of the bones. Is she taking it, and how much? Orwhat meds is she on.
She may need a more aggressive treatment, and she may also need to see a neuromuscular specialist who specializes in MG. Sorry to say,Not all neuros are equal..smiles.
My first neuro was really nice, but she really new very little, I now see a neuromuscular specialist through the MDA, and what a difference.
It will get better, but it does take a lot of time to work it all out.
Does she have other medical problems other than MG?
So many things play in this. But the meds, prednisone can cause the thinning of the bones.
My first year was horrible too. It's a terrible roller coaster ride.
best of wishes
Love Liz
Since she has been in the hospital so much she actually has a team of Dr.s working on her. She is in Loma Linda University Hospital, supposedly one of the better hospitals. I can't personally tell you how good they are and I sometimes wonder myself...sigh. She was taking prednisone and that is most likely what has caused her bones to get soft---or that is what we are being told. They have stopped giving her the prednisone but it is the prednisone that was helping with the Myasthenia Gravis so much. Just can't seem to win!! My sister is 57 years old and up intil the onset of this disease she was the picture of health. She walked her dogs 3-5 miles each day. She lives in the mountains and was always an active person. She ate such healthy foods...I only wish I ate half as healthy! Her only problem before the MG hit was she had a tooth problem. She went to the dentist and had it fixed and wham! That very same day she started with the first symptom--double vision. It was one symptom after another after that. Don't know if the tooth/possible infection had anything to do with this but it is odd. Her wieght "was" good (now she is as thin as a rail). In this last year she has gone from a perfectly healthy person to a sickly, very depressed person. It is ripping me apart watching her go through this. We talk daily although just before she was diagnosed with MG I moved 3,000 miles away from her. Now we still talk by phone daily. I'm just trying to find out any and all information there is regarding Myasthenia Gravis. I need to know.....sigh. I guess I want a miracle. But miracles do happen and I will not give up!!!
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