I saw the neuro recently. Prior he had sent me to an epi. from where the surgery was done. He wanted the MRI if possible & a "fix" w/ the drugs. MRI can't be done as I said years ago. Epi. added amounts of some & said to get off the pheno. So now the neuro sees the records & opinion & doesn't want me off the pheno. He claims it looks good in the paperwork, but he saw me for 4 days w/ a tube down my throat & couldn't breath if they laid me flat.
Why the heck did he send me if he didn't take their opinion & they probably weren't told about the 4 day tube other than what was told from us & paperwork. Obviously, little came outta me. I was "awake" briefly when they yanked it out, but was back in my own little world for another day.

Back to pushing the VNS. The rug keeps being pulled under my feet.