Hi Deb and welcome to NeuroTalk
so sorry to hear the reason you are here.

That must be very hard for you.
we have a subforum for dementia and fronto-temporal disease grouped in under Alzheimers. I have copied your post over there too. It isnt a very active forum but does have some archived info that may help you find answers and also some members who check in there.
here is a link to your post there.
http://neurotalk.psychcentral.com/sh...ad.php?t=35458
I hope you will stay connected here...we have many other forums in the community, ranging from light hearted to spiritual through these serious health conditions, and it is good for you to have a support group during this difficult time.
Cheri