Terry
Ali's mum here - Just to clarify, Alison was put on neurotonin also and this coincided with her balance loss.
She was taken off it as one of the known side effects is weakness
It transpired that the balance problems were not caused by this, rather than an exacerbation of RSD symptoms caused by a bier block carried out at the same time
In Alisons case even the slightest injury or aggrivation to a RSD affected area can cause a massive flare up of symptoms as we have seen twice in the last three months with her arm
Please continue to walk your son, no matter how hard that seems for both him and yourself. It is really important that you keep circulation and movement going as much as possible to prevent a spread or worsening of symptoms
As you son doesn't have RSD in his legs I would think it more likely that he is experiencing side effects of the drug - when all is said and done these are children taking adult dosages of medicines which are not always licensed for use on people under the age of 16.
It may be that the dosage is too high or has been increased too rapidly
Good Luck and let me know how things go
Andrea