Thanks for taking the time to reply. I am so very sorry to hear you are also suffering with MG. Not a nice disease. This year, her first year with MG, has been devestating. She is near death one month and back home for a week or two and back to the hospital. Her major problem right now is infection--staff and others. Seems the infections came with the ports she had put in (several times so far). It's a horrible roller-coaster-ride for sure. I wouldn't wish it on anyone. I did my daily call to my sister this AM and was informed she is back in ICU----problems breathing again. I can only hope she will stay strong as I will stay strong for her. That and praying--that's about all I can do. Yes, getting informed is also very important. I just wish they had a cure---I'm sure we all wish that! Well, my friend, you take care of yourself. You are never alone. I have found some wonderful people to talk to here and on some other forums. I will pray for you as well as my sister.