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In Remembrance
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Join Date: Aug 2006
Posts: 1,002
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In Remembrance
Join Date: Aug 2006
Posts: 1,002
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Neurology Now Magazine Online
I just moved my Neurology Now subscription online. (The other mag you must write to. Both are free. Both have a TON of information pertaining to nerves that are of interest to us.)
What boils my nerves, is as I read these sites, it leads me to another site, and so on, and I always am seeking statistics on TOS (which there are none), or, I want to see how they describe prognoses. And darned if the don't always say, "with conservative care early, TOS can have a good outcome."
Now that may not **** off some of you, but there are a BUNCH of reasons it ****** me off.
Firstly, when MOST docs don't recognize TOS and wouldn't know it from an attack from a frog from Mars, then how are we to get that early treatment?
And THEN, when these same docs don't know the CORRECT PT, but always seem to want to throw us into STRENGTHENING PT, and grind us to a good but permanent HALT, then what is to be done?
And lastly, what about the rather numerous, growing, bunch of us who despite the right PT eventually (if not early for some) the TOS just still got worse and worse, and we lost of jobs, our lives, our pleasures, and we lived in a torment of pain worse than ever imagined, and the surgery just barely changed a bit of that??? Where are those numbers, who speaks for or speaks up for those people?
So I wrote NINDS and a few other sites and gave them a good pinch of my angst tonight.
I should be in bed - I am in enormous pain now (when I wasn't so bad off) due to my irrational need to want these sites to accurately reflect the full panoply of TOSers...
God help me.
Ah, but if you haven't already poked out of here, do remember to keep your subsription going as pretty soon you'll see a TOSer on the cover, I am POSITIVE.
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