Cathy... so sorry to hear of your experiences ..... persistant [head] pain and finding relief can be "challenge" , crazy making and very frustrating, as well as other aspects & manifestations of TBI....

I wanted & tried to respond to your post earlier...(did write some stuff on headaches but Lost post then "misplaced" ? in anothers thread on Pain MGT. Again, sorry to hear of this experience but sadly not surprised.... I've been to many DRs/specialists inc. "pain mgt" -- most have been very disappointing ..... and felt like waste of time, energy and $$$

I've seen many DRS.... for headaches , other chronic pain & neuro issues --that began 12 yrs ago when I was hit by a car as pedestrian. My PCP at that time was wonderful --not only in validating my issues & concerns but also working w/ me-- to find relief.
Tried many meds (some helped; others made worse) --more on this later....

"alternatives" as PCS McGee addressed-- may be good-Best option--if you can find/access appropriate interventions and "good" therapists/practioners.
CranioSacral and other theraputic massage helped much at that time. I was also going to PT--specifically warm water -aqua therapy and had access to many other alternatives. I was living in Hawaii then. Many of treatmts were "covered" by my insurance.

Since I moved -back to my parents home--haven't been able to find desired alternatives ( but I'm still looking & researching.)
I've been living in a "more stressful" environment & sitaution--also have incurred additional head & other injuries ( pieces of My story's been told in other posts at various times..... don't want to get more sidetracked..... which is as easy as rambling on....)
Topic here is headaches/pain mgt.

headaches continue to be a BIG problem for me too as has accessing viable treatments and relief. another recent head injury has exacerbated these along w/ other problems.

I'm getting a bit overwhelmed & "confused" --trying to stay on track .... want/wish I could share someting that can/wil help you....

I've gone in circles.... here and w/ medical systems...
have tried many various meds--inc. narcotics--which while have helped some of my pain, NOT good for my headaches.
I've tried various "rescue" -immediate relief (OTC, RX, herbs--w/ varying success & relief; as w/ prophylatic (preventive) meds ---these have included AED (anticonvulsives) like Topamax. and other meds like Inderal.

What has given me best relief has been nerve blocks; but varied in duration. my "headaches" --Dx'd: occipital neuralgia... my neuro feels Botox would be best Tx and I'm waiting to get, try....and will update

I did address this in thread on Pain Mgt. few days ago?? Sorry if I'm repeating . that's another ting I do -- "blame" TBi for this & other dysfunctions. I come here to this forum.... where others who Know & understand, empathize, share experience and offer support & info. I've not found elsewhere.

Unfortunately this alone may not "fix" problems or provide relief desired but it helps...

I hope you find what you need...and Deserve!

I need to stop now... but hope to continue ... w/ more... later...


ps... I wanted to add that my PCP who has been great recently referred me to [another] Pain Mgt. I don't know if I will go... too many disappointmets & frustrations. I'm putting my hope on my neuro's treatmt suggestions and other "alternatives" --- that I'd like to discuss ....more ...
as well as other issues, concerns, or questions you have & want to share?

Praying for BEST for ALL.. .