I just posted to Vanityfare about my health and what I went through. Both of you sound a lot like I was when I first started.

When I went to see the TOS Drs. in Denver they added on CFS, CPS, Central Sensitisation Syndrome.

When I went to see the lung Dr. he added on Raynolds along with other problems with my breathing.

My story is too long but I started out after all of my tumors were removed I ended up with back problems. I woke up one morning and couldn't get out of bed. My Dr. put me on Hydrocortozone and Valium and I couldn't take either. They got me out of bed but I fell several times on them and ended up with TOS on the left side. I was sent to see an Osteopathic Dr. and she popped all of my bones and caused me to have TOS on the right side along with Ulner Nerve intrapment, Carpal tunnel, triggerfinger, and rotator cuff problems.

I went to see my TOS surgeon that did my TOS surgery and he figured out I had RSDS and sent me to a hand surgeon that was very up on it and he figured out I had all of the other problems mentioned above. I saw a Rhemutologist that diagnosed me with Fibro. I was diagnosed with MS 3 years ago by my Neurologist.

The reason I am telling you about these problems is that there is a possiblity that both of you are dealing with more then RSDS but it takes the right Drs. and Specialist to figure it all out.

It's took me 8 years to get to where I am now. I still have the RSD pain some in my right hand and arm along with some other areas but if anything flares I go in and get triggerpoint injections in that area.

The SGB's helped me a lot. They helped take care of some of the pain and gave me more use of my hand and arm.

As I told Vanityfare, I am on Methadone which a lot of people on here can't use. That came only after trying every other pain med out there. Couldn't do any of them. When we finally came to the Methadone, it was like a miracle that I could take it and it did help.

Both of you have a long ways to go but you will get better when you find the right Drs. and the right treatments.

Greyhound, I don't understand why she didn't go ahead and do the block to help rule out the RSD and at least get some of it into remission. Even with other issues the blocks might have calmed down the RSDS. She is wrong about not having RSD in 3 extremities. If that were the case, there wouldn't be people out there with full bodied RSDS. I have it in several areas and also inside of me so anything is possible with the RSDS from what I have seen on this forum and others.

I hope both of you start getting some relief soon.

Ada