Back on the IENF density test....I have more questions if that is possible.
Well, glabrous skin isn't that obscure...seems to me, a logical next step in my case. Seems to me, they should take those if you present with dysautonomia and SFN, not to mention a fair number of those glabrous sites they mentioned have burned in my case....I say burned or hurt...in the past tense. No more pain there...probably as there are few fibers and therefore, little or no pain.
I still have some questions as to how CIDP gets differentiated from other neuropathy, given you have low IENFs, and normal evoked potentials.
Is the evoked potential, or SNAP the critical diagnostic criteria for CIDP?
Watch in a year or two I will get diagnosed as a flaming diabetic...overnight.
I didn't know there were 30 kinds of CMT!
If glabrous skin has low IENFs it seems to me, that would be a definitive test for hereditary neuropathies. Is that reasoning correct? The article below has a link that does not work, to the charts of CMTs.
I was told I did NOT have CMT, (well, at the time it was thought I did not have CMT)
nor CIDP, yet my IENFs are abnormal with a tibial one of less than 2 fibers....(no wonder I don't feel much below the knee) That test was almost 4 years ago, and this hasn't gotten better. HMM. I have also had a tibial fracture for no good reason...stress fracture...which could have been due to poor proprioception and repetitive trauma....OR, vascular by my reasoning.
I am thinking, neither CMT nor CIDP truly were ruled out, unless normal evoked potentials rules those entities out....
I also can not explain why my foot has more epidermal nerve fibers than my calf....which seems to me to be more genetic...yet my neuropathy is considered length dependent.
Bicep biopsy indicates myopathy as well, mild, deemed 'likely neurogenic'.
Does any one have any ideas here???
http://brain.oxfordjournals.org/cgi/...ull/128/5/1168
That CMT count, doesn't consider the hereditary 'myopathies' of which several are proving to actually be neurogenic, not myopathic. Again...HMMM Those I am not getting into on this forum, as that is a whole new can of worms.