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Old 01-13-2008, 07:22 PM
gaykir gaykir is offline
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Join Date: Aug 2006
Posts: 121
15 yr Member
gaykir gaykir is offline
Member
 
Join Date: Aug 2006
Posts: 121
15 yr Member
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We moved from Chicago back to Dallas as soon as possible once Kevin went on disability. Our home in Chicago was full stairs, the winters were awful and we had no familty there.

We considered going back to CA but decided it was too crowded and too expensive in the long run. Besides both the children had migrated from CA to TX.

In retrospect, I realize how fortunate we were to move while Kevin was still fairly functional. Since then, we have made it a habit to prepare in advance while he is still able to participate in decisions and before it becomes an absolute necessity.

Consequently, our transition, as the disease progresses, has been easier than some we know. We realize it is not going to improve in the long run so we've remodeled the bath, a bedroom and moved to a 1 story home. Do whatever you can to prepare. It makes life for the Parkie a whole lot easier than to wait until you are desparate!

We have wheel chairs and transport chairs and walkers etc. though they are rarely, if ever used. No matter what happens, I have the equipment to make it easier for Kevin. We have used the wheelchair on rare occaisions and I keep the transport chair in the car all the time even though I have not had to use it.

I never want him to feel uncomforatble or that he can't manage something. I want to always be prepared to make his life comfortable and allow his disease transition to be seemless.

If we had waited to move it would have been horrific. As the disease progresses I find he is less and less able to adapt graciously.

Just my thoughts as a caregiver.........
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