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Old 01-14-2008, 06:32 AM
Sedatemink Sedatemink is offline
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Join Date: Jan 2008
Posts: 1
15 yr Member
Sedatemink Sedatemink is offline
New Member
 
Join Date: Jan 2008
Posts: 1
15 yr Member
Smile Carotidynia

Quote:
Originally Posted by stephen4101 View Post
Can anyone who has had chronic carotidynia please let me know how long your symptoms have been present and what you have done to get rid of it or minimise the symptoms?
Has anyone with alternative treatments to steroids and NSAIDS?
I have had it for 2 years with some resolution but recurrences. Have had two big courses of prednisene and lots of ibuprofen, but I cant exercise as it recurs and flares up! It did settle for a while but has flared up again for past 6 months. I am still able to work but life has a big filter on it now! Any help appreciated

Stephen
HI Stephen, I have had the symptoms for about as long as you. In the end I was begging for an ultrasound of my neck. When I finally had one, the results came back witha 55% stenosis in my right carotid artery. I was rushed off to see a Neurologst in one of the best hospitals here in Perth WA, and it was at my suggestion that I had an MRI. I had been put on all these different pills for a Stenosis, and they were making me feel worse than I already did. I thought I was gonna have a heart attack. I had my MRI, and low and behold NOTHING showed up. NO narrowing of anything anywhere. In the meantime while waiting for my results and app with the top doc, I searched the net and found that my symptoms matched Carotidynia.I asked for my money back, seeing as I had already found out what was wrong with me, but no chance of that happening.!!. So I went to see my GP and asked to have a short course of steroid. She balked at the mere suggestion, but I insisted that she do that. In the end she gave in and I was on Predisnone for only 4 days at 20mg 4 half 4 quarter then off. I was pain free for about 6 months and only last Friday I got the symptoms back again.. So I just took a quarter of a pill for two days then wean off. I am feeling a lot better today !!. I honestly dont know how to cure this. I have had Mortons Neuromas in both feet, I also had a Frozen Shoulder a few years ago too. I had to have injections straight into the feet in between my toes. It was very painful but they worked after the third go. I also had injection in shoulder and a very painful time at the physio for over a year.I am wondering if all these symptoms are connected in some way!. I also get numbness in my right hand first two fingers and thumb are bad sometimes. I went to see and eye specialist aswell and he said I had Atypical Migraines. My eyes flash from side to side I cannot do anything not even sleep till this passes, I am also quite sick and dizzy. This is Aytpical Migraines according to him. Well I am sick of going to the doctors, so now what !!.. Let me know how you get on with your treatment from now on. Does your flare up a bit if you talk, or eat sometimes mine does. You can see my neck throbbing and its a bit swollen at this moment. The docs thought I had an ear infection too... Keep in touch Sedatemink.
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