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Old 01-14-2008, 06:35 PM
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Junie Junie is offline
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Join Date: Sep 2006
Location: East Tn
Posts: 359
15 yr Member
Junie Junie is offline
Member
Junie's Avatar
 
Join Date: Sep 2006
Location: East Tn
Posts: 359
15 yr Member
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I had to respond to this thread due to the title because in 2006 in June I had a 3 level spinal fusion that was a disaster...first NS cut into my spinal cord twice causing me to bleed into my spinal fluid and instead of being in hosp 4-6 days I was in 12 and DH carried me out with me yelling that they were killing me...and I came home and fell time after time, lost all control over my B&B and NS never did anything, not even a Xray and no other Dr would touch me (when I would go to ER they would send me away saying to see my NS....anyway 3 months later I went numb from my waist to the tops of my thighs and my PM had a stat MRI with Contrast to rule out CES and I was sent next day screaming and kicking all the way back to same NS that nearly killed me and he said I had arachnoiditsis and there is no cure. He recommended pain pump but no Dr will do it, would rather I take huge amounts of oral narcotics ( I also had/have muscle spasms since day one) so I take Kadian, 100mg 3xD MS 15mg 2xD and Valium 10mg 3xD for spasms (and if I stop taking them I can't pee, plus my bowel is paralyzed as well! The pain meds dulls the pain some but its always there, and no bending or twisting and if I lift over 10 lbs I go down....I have to split my housework/cooking into 10 minute increments or I think I will fall over.I still have incidents of incontinace at times, mostly I just can't go so I have RX for self cathing kits. The numbness for me has never left, only spread and when I researched it (CES) and (Arachnoiditsis) I found the number one cause was blood in spinal fluid and second was steroid epidural s. I have horrible fire like hot poker pains suddenly shoot up my rectum/vaginal area without warning and the only one that understands it is my Primary Md. My left arm has also been numb and my PM wanted to do surgery and I said HELL NO!!! I will never let another Dr touch me with a knife. I truly hope you do not have these conditions because they are progressive and forever. Be careful and good luck!
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Back injury 1999, PN,DDD, Spinal Stenosis, Arthritis, Chronic pain, Lumbar Fusion 6-06, Pain Worse then Ever Since!10-10-06 Arachnoiditis! CES! now numbness from waist to thighs, bowel, bladder paralysis, self caths, chronic constipation. Left sided weakness! No appetite depression! Bed 22 hrs day!
Under care of PM 3 years. Diabetic, lost over 100 lbs was 300+, now 174 lbs. Normal labs, diet controlled!
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