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Old 01-14-2008, 08:26 PM
lisag lisag is offline
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Join Date: Oct 2006
Posts: 186
15 yr Member
lisag lisag is offline
Member
 
Join Date: Oct 2006
Posts: 186
15 yr Member
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Hi Alffe.
At this point I'm just confused.
I 'm not even sure what happened as I just logged in today.
I'm not sure if the quote you posted was from Doc John or another John.
However, I don't know of "any" ALS forum that seems cold and univiting.
A long time ago , a couple of moderators on one got overzealous on one but to me that is now history and water under the bridge.
Some forums are more scientific and medically focused in nature -- but different PALS and CALS focus on different things.
Some focus more on experimental meds -- some choose that route others don't.
Some like this one post information and news mainly.
All forums have their place and serve a valuable service.
But , a forum is both what it's administrators and "all " members make it. That I do definitely agree with.
The most vocal members however , are not always right and do not neccessarily represent the majorities opinion --and I'll include myself in the vocal group-

I don't post many news articles myself. Though I do read them , find them interesting and appreciate them.
Everybody has their own unique pesrsonality and capabilities of contribuiting to a forum.
I feel the best way I can help others for me personally as I have been a CALS for over 8 years -- is to help try to solve and share experiences of how daily problem were handled or take fear out of specific challenges in dealing with the disease, when a question is asked.
But no one solution works for all, and no one forum will address all PALS and CALS various needs.
If a question is posted I 'll try to help if I can., on any forum I am a member of. But , you can't share experiences or support others if questions are not asked.
Lisa
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